Title: Shannon’s Gift: A Story of Love, Loss, and Recovery
Author: Nate Bennett
Genre: Grieving, loss, love story
Publish Date: June 1, 2014
Publisher: Booklogix
Event organized by: Literati Author Services, Inc.
~ Book Synopsis ~
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What is Mitochondrial Disease?
Tell us about Shannon’s illness.
Shannon suffered from mitochondrial disease – or mito as
it is known to the victims, friends, and family of those afflicted. A mito
patient’s mitochondria are not effective at “producing the power” that cells
need to function and that organs need to thrive. It is relatively rare;
something like 1 in 3,000 are affected by it. Its cause is not well
understood, there is no truly effective treatment, and there is no
cure. On the other hand, mito is critical to understand because the
cellular function that mito patients lose is though to play a role is an entire
constellation of conditions, including ALS, autism, and Parkinson’s.
Shannon was diagnosed in her early twenties, around the
time that we were married. Her primary concern was whether or not
she would pass it on to any children. At the time, she was advised
that the greater risk was to her health in carrying a child to
term. She was undeterred; we married and had two very healthy boys.
During her 20s and 30s, mito was really on our radar. That approach made sense because there wasn’t a treatment that was anything beyond a hope and a prayer – and because the best doctors could tell her was that she either would either (a) experience a slow descent caused by the unavoidable and untreatable cumulative effects of mito or (b) die of some other natural cause before mito had a chance to hurt her. She did try things that were thought to help, such as co-enzyme Q10 and L-carnatine, but all she could tell they were doing was creating unpleasant side-effects. Mito was out of sight and out of mind.
In her 40s, the signs of mito’s impact began to
appear. Her vision – never great – got worse. Ocular myopathy,
droopy eyelids, etc. She had problems with digestion. She
started to have problems chewing and swallowing. She hardly ever
complained. What she was was afraid of what she saw coming – an active
mind trapped in a body that couldn’t function.
She was spared that future
by her death. After
she and I dropped our youngest at College, she finally underwent arthroscopic
shoulder surgery as an outpatient. The doctor came to tell me about the success of the procedure and sent
me to get the car. Unfortunately, all the years that all of her systems
were not being properly “fed” with energy caught up to her. Though she had
awoken fine from the procedure, recovery was too much for her and she collapsed
while I was driving around to pick her up. She died 11 days later and the blog started.
About the Author
In the fall of 2011, Nate lost his wife of 26 years in a shocking turn of events. She’d just had an outpatient procedure on her shoulder and the doctor sent Nate to get the car to bring her home. In the next few minutes, things went terribly wrong. Shannon collapsed, never to recover. After more than a week in a critical care unit in pursuit of a cure, Nate honored Shannon’s wishes and had her life support discontinued and she died shortly later.
Nate’s book, Shannon’s Gift, is the result of the blog Nate kept during Shannon’s hospitalization and after her death. Initially, the purpose of the blog was to keep friends and family informed of Shannon’s condition. Quickly, though, the blog became Nate’s catharsis and a way to stay connected to a web of supporters. After the sudden loss of his wife, Nate was surprised and comforted to discover a vast virtual community of support. His blog posts – alternately expressing poignancy and dry wit – eventually attracted tens of thousands of readers and a following from people around the world that didn’t even know Nate or his wife.
The unique book gives the reader a window into the starkness of a widower’s grief in real time and a look at how social media has changed grieving in today’s world. In the end, with the support of his virtual community and the strength he was able to draw from remembering Shannon’s wishes for him, he finds love again. While Nate is new to the personal memoir genre, he is co-author of two management books, "Riding Shotgun: The Role of the COO" and “Your Career Game: How Game Theory Can Help You Achieve Your Professional Goals.” Both are books published by Stanford University Press. Additionally, his research has been published in respected scholarly journals such as the Academy of Management Review, the Academy of Management Journal, Psychological Bulletin, and the Journal of Applied Psychology. He has also published in many widely read resources for managers including the Harvard Business Review, Wall Street Journal, BusinessWeek.com and Forbes.com. Nate Bennett is a professor of the J. Mack Robinson College of Business at Georgia State University in the summer of 2012. From 1999 to 2012, he was on the faculty of the business school at Georgia Tech, where he most recently held the position of the Catherine W. and Edwin A. Wahlen Professor of Management. From 1999 until 2010, he served as associate dean and then as senior associate dean. Prior to Georgia Tech, he served on the faculty at Louisiana State University. While at LSU, he served at times as the management department’s Ph.D. program coordinator, department chair, MBA program director, and associate dean. Nate holds a BA in sociology, as well as a MA in Social Research from Tulane University. He earned his Ph.D. in Management from the Georgia Institute of Technology. He resides in Atlanta, GA.
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